“What would you do, doctor?” The family had been explicit in wanting straightforward communication about their child, whose neurological disease had progressed to the point where she was continually seizing, despite every medication the physicians had tried. The seizures were in turn damaging her brain, such that she was minimally responsive to stimuli and was … Continue reading The Ethical Use of our Therapeutic Connections with Patients’ Families
primary nursing
Walking Closely with Families: A Letter
A letter to my long time patient’s mom — You were trapped in the fishbowl of our ICU. You went from a numb stare to near catatonic with grief to terse and closed in to opening your door a crack to pouring your heart out, telling me stories, speaking of fears and hopes and uncertainties … Continue reading Walking Closely with Families: A Letter
The Story of the One Loved
You were conceived, and your mother loved you immediately with her whole heart. In your earliest days, your hair and your face would already be programmed to take on much of your mother’s likeness. But something in your nascent genetics would also go quietly awry, taking you and your mom on a trajectory that some … Continue reading The Story of the One Loved
Wholehearted Nursing vs Codependency
How do you know if you’ve crossed the line from trying to be wholehearted and deeply empathetic, to being co-dependent? This was a question that came up in a couple of conversations at the recent (and incredible!) End Well conference. I’ve thought about it quite a bit over the years, as there is without doubt … Continue reading Wholehearted Nursing vs Codependency
New Blog Post for AJN: Primary Nursing of Medically Complex Children in the ICU Increases Parental Trust
I’ve been wanting to write about the experiences and struggles the healthcare community can face when we take care of medically complex kids who often have severe developmental disabilities. This blog post for American Journal of Nursing is finally that post, with a lot of vulnerable honesty. But the blessing here is that I am … Continue reading New Blog Post for AJN: Primary Nursing of Medically Complex Children in the ICU Increases Parental Trust
Close Enough to Change: What Primary Nursing can do to a Nurse’s Heart
He could not speak. His disease process barely allowed him to move any longer. But he was fully present, and he would smack his lips to get my attention. He could use his eyes and a slight nod or shake of the head to communicate his needs and desires. He was fully present, a little … Continue reading Close Enough to Change: What Primary Nursing can do to a Nurse’s Heart
The Heart of Nursing 