Earlier this week, a panel of colleagues at my hospital participated in an Ethics Grand Rounds where they discussed the topic, "When Parents Question Our Expertise: Trust Alliance, and Boundaries in Pediatric Care." As you can imagine, the conversation was full of stories about tensions with patients' family members, personal/shared struggles when we feel fractures … Continue reading Healthcare Workers are from Mars, Patients and Families are from Venus
ethics
The Ethical Use of our Therapeutic Connections with Patients’ Families
“What would you do, doctor?” The family had been explicit in wanting straightforward communication about their child, whose neurological disease had progressed to the point where she was continually seizing, despite every medication the physicians had tried. The seizures were in turn damaging her brain, such that she was minimally responsive to stimuli and was … Continue reading The Ethical Use of our Therapeutic Connections with Patients’ Families
When Empathy and Desire to Help Others are not Enough to Fuel Nursing
In a recent harrowing shift and the subsequent “I feel like I’ve been hit by a truck” day after, I found myself wondering what was really behind some feelings in me that we generally label “burnout.” Did I just not care enough about my patient and her family to consider all the hard work more … Continue reading When Empathy and Desire to Help Others are not Enough to Fuel Nursing
Participate in the Survey for Grief Sensitive Healthcare Project
"What do I even do as the nurse with this devastated family right now?" When I was in nursing school, I didn't receive any formal training in how to sit with deeply grieving patients and families. I remember one brief exercise in empathy during an ethics class, where my classmates and I awkwardly role-played and … Continue reading Participate in the Survey for Grief Sensitive Healthcare Project
On Collective, Systemic Grief as an ICU Nurse
Those who have been following my public work over the years know that it started off with a desire to bring voice to - and integrate - the individual grief that we carry on behalf of our patients. When COVID hit, nurses began to grapple with entirely different levels of grief. Particularly for my incredible … Continue reading On Collective, Systemic Grief as an ICU Nurse
Reckless Politics and the Potential for Profound Harm in Healthcare
I have little desire to turn this space into a forum for political arguments. That said, we are barely recovered as individual healthcare workers, a healthcare system, and a country, from the pandemic and some of the political mishandlings that happened during the pandemic. Healthcare has never been easy, but we all have felt the … Continue reading Reckless Politics and the Potential for Profound Harm in Healthcare
The Story of the One Loved
You were conceived, and your mother loved you immediately with her whole heart. In your earliest days, your hair and your face would already be programmed to take on much of your mother’s likeness. But something in your nascent genetics would also go quietly awry, taking you and your mom on a trajectory that some … Continue reading The Story of the One Loved
New Blog Post for AJN: Primary Nursing of Medically Complex Children in the ICU Increases Parental Trust
I’ve been wanting to write about the experiences and struggles the healthcare community can face when we take care of medically complex kids who often have severe developmental disabilities. This blog post for American Journal of Nursing is finally that post, with a lot of vulnerable honesty. But the blessing here is that I am … Continue reading New Blog Post for AJN: Primary Nursing of Medically Complex Children in the ICU Increases Parental Trust
An Unexpected Remedy for My Moral Distress
When Katherine first started bringing her very medically-complicated daughter into our pediatric ICU, we all marveled that her child had even survived the early months of infancy. All the odds were against them, but they were tough, this mom and daughter pair. I didn’t know what her pregnancy and birth journeys were like. Did she … Continue reading An Unexpected Remedy for My Moral Distress
Stewarding Power as a Nurse
I am in a position of power as a pediatric ICU nurse. I can hold a wriggly patient down, poke him with needles, insert tubes into her nose. I can give or withhold food to a hungry child per a doctor’s orders. I can abruptly wake my patient from much-needed sleep at any time, day … Continue reading Stewarding Power as a Nurse
The Heart of Nursing 